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Abstract #52895 Published in IGR 15-1
Caregiver burden assessment in primary congenital glaucoma
Dada T; Aggarwal A; Bali SJ; Wadhwani M; Tinwala S; Sagar REuropean Journal of Ophthalmology 2013; 23: 324-328
PURPOSE: To assess the magnitude of caregiver burden and depression in primary caregivers of patients with primary congenital glaucoma. METHODS: Fifty-five primary caregivers of children diagnosed with primary congenital glaucoma were evaluated. The magnitude of burden on caregivers was assessed using a Caregiver Burden Questionnaire (CBQ). The overall aggregate burden and burden across 3 domains-socioeconomic, emotional, and psychological-was evaluated. Depressive symptomatology was evaluated using a Patient Health Questionnaire-9 (PHQ-9) standard questionnaire and graded from mild to severe. RESULTS: The mean age of the presenting children was 8.11±46.71 months; all of them were male. The mean age of the study participants was 33.6±8.36 years (53 female, 2 male). Thirty-nine (71%) individuals were identified to have moderate aggregate burden and 3 (5%) had severe aggregate burden. Twelve (22%) subjects were noted to have moderate depression, while 6 of them (11%) had either severe or very severe grades of depression. CONCLUSIONS: Caregivers of patients with primary congenital glaucoma have significant emotional and psychological burden. Moderate to severe depression may be present in one-third of individuals giving primary care to children with congenital glaucoma.
All India Institute of Medical Sciences, New Delhi, India. tanujdada@gmail.com
Full articleClassification:
9.1.1 Congenital glaucoma, Buphthalmos (Part of: 9 Clinical forms of glaucomas > 9.1 Developmental glaucomas)
1.4 Quality of life (Part of: 1 General aspects)
14 Costing studies; pharmacoeconomics
